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Redefining Normal
As I continue to struggle with some of the medical issues I’ve got, I’m trying to figure out how to maintain my independence, safety, and general medical stability. Sometimes that’s easier said than...
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Feeling Deformed… and Being Needed
I just got back from the endocrinologist’s appointment… they always weigh me there. I already know the number will be horrible before I walk in the door. I know it every time I look in the mirror, or...
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Just One of Those Months
For the past week and a half, I’ve had some moderately severe jaw pain on the same side where I broke a tooth, and had said tooth repaired, requiring me to open my mouth wide enough to swallow the...
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Frustration with Chronic Health Issues and Pain Control
Yes, I know I write about this often. It’s my primary way to get stuff out of my head and blow off some steam. I figure that people can choose if they read this or not; I have no choice living with...
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Nutrisystem Discussion Boards….
I’ve been on Nutrisystem for over a month now, and have lost 15 pounds. The food is pretty good (some better than others, some horrible, and some actually decent). The plan is balanced, and I don’t...
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The Social Implications of Dysautonomia
It’s so embarrassing to have physical reactions to relatively non-threatening stimuli. My autonomic system has a very itchy trigger, and I have to limit what I expose myself to in order to avoid a...
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Chronic Pain in Its Various Forms…and Dysautonomia
While I’ve lost count of the exact number of days, this current ‘spell’ of severe headaches has gone on for at least 4-5 weeks, with maybe five or six days of no headaches at all in any given day. Of...
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Crazy Few Months…
I’m tired. The last few months have been fairly miserable. I’ve been on Nutrisystem since the latter part of May of this year. That was all going well with more than 30 pounds lost and kept off even...
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What NOT To Say To Someone Who Is Disabled or Dealing With a Serious Illness
I think most people are trying to be helpful or supportive when they make comments to someone about their health and/or treatments, but there are some things that those who have not experienced the...
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Turning 50… and Already On Medicare For Six Years
I turned 50 years old today. I can’t figure out where the time went ! I certainly don’t feel ‘old’, and think that 50 is the new 30, even with the physical limitations I’ve had for years. I’ve never...
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The Lull in Posts Over the Past Year
It’s certainly not for lack of material. Or being too busy (well, having a new puppy has been interesting over this last 11+ months). In many ways, it’s because I have too much rattling around in my...
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Sorting Through The Symptoms…
I’m whining. *** Warning *** I’m not chipper and smiley right now… Read at your own risk ;) This has been a weird few weeks. Actually, things started to get worse with the dysautonomia during chemo...
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Groceries and Dysautonomia
This one went to OH this week :) More on him in a while…. Before dysautonomia, I loved grocery shopping. I’d go to several places for various things, and just truly enjoyed picking out fresh produce,...
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Hot Flashes, Menopause, and Dysautonomia
For many years, I’ve wondered what it was going to be like to have the heat intolerance of dysautonomia, and the hot flashes of menopause. Well, now I know. It’s like nothing else. If you’ve ever...
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Former Co-Workers When I Worked Pediatrics
I was stumbling around on Facebook, and found three of the R.N.s I worked with when I worked pediatrics, and sent ‘just saying hi’ messages. I’m not sure they’ll see them, but I hope they do. When I...
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Dysautonomia Awareness Month…. I’m Very ‘Aware’ All Year, Every Year
OK. October is Dysautonomia Awareness Month… With Breast Cancer Awareness Month at the same time, nobody will care about dysautonomia. Men are more than likely behind the sanctity of boobs, so along...
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Sometimes Being Homebound and Isolated is Really Hard
Considering what has gone on with three people who have been very important in my life this year (they died), I have to know that I’m very fortunate. Two had battles with horrible cancers between 9...
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Does It Ever End?
I’m sure the dysautonomics out there will totally ‘get’ this. Even as an RN for 30 years (the last 11 on disability, but I keep my license active to deal with myself !), I’m constantly learning about...
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Frustration and Unpredictability of Dysautonomia
I’m supposed to be over at my dad’s friend’s home, eating tacos with them. I’d looked forward to it since getting the invitation this morning. I took a shower (not a simple task when temperature...
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It’s Been A Bad Few Months…
I’m so frustrated with the increase in limitations over the last few months, especially with my grandma not doing well (and wanting to see her). I haven’t said a lot recently, but it’s not because...
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